Wednesday, February 1, 2012

New Autism Definition

I'm typically the type of individual that steers clear from having a strong opinion on political matters. I'm actually quite ignorant in such matters, and I don't expose myself to pilitics enough to typically have an opinion at all. However, I've come across a subject that I can't ignore. I've read many articles. I've listened to professionals on this topic, and frankly, I'm concerned.

Currently, to be diagnosed with Autism, you must have at least 6 of the 12 different characteristics listed in the 'Bible of diagnosis' or so I've heard it called. (I'm no expert on Autism, so if I'm incorrect anywhere, please let me know). At this time, Asperger's Syndrom is included in the Autism spectrum so-to-speak. PDD-NOS is also included in this spectrum (Pervasive Developmental Disorder- Not otherwise specified). I recognize the differences between these disorders, however, under this new definition of Autism, the majority of individuals that have been diagnosed with Asperger's and PDD-NOS will no longer be considered in the same spectrum. There are also some who have been labeled with Autism who will no longer be considered to have Autism because of their high-functioning abilities.

A current study showed that 1 in 100 children is diagnosed with Autism. Under this new guideline, in which the specifications for Autism will be strictly narrowed, will drastically reduce this number. However, this does not mean that there will be fewer kiddos with the disorder. It only means there will be fewer kiddos receiving the benefits the government provides for those diagnosed with Autism. I'm beyond frustrated with this. I'm all for being more effective in diagnosing disorders! If we're not going to label this kids with Autism, then can we not still find someway to fund their schools so that they can still receive services that they need? Let's come up with a new label for them. The need will still be there, even if the services aren't. I'm not for excluding families who need the support to care for the needs of their children.

Transportation, Tuition Reimbursement, certain devices needed, 1 on 1 work with a trained Special Education teacher, Speech Therapy, Physical Therapy, Occupational Therapy, Rehabilitation services, Recreational services, Transitional services after High School Graduation, Psychological services, these are a few of the services the law says will be provided to those diagnosed with disabilities, according to their need. Once this is put into complete effect, children who would have once been diagnosed with Autism and would have received the services he/she needed, now has the posibility of being on their own. The school systems funding for these services will reduce and a child who may have once been provided with Speech Therapy, free to the family, will have to find another way. I don't know about you, but this just doesn't sit right with me.

I've also heard mixed reviews on what is actually going to happen to those who are already diagnosed with Autism and will no longer fit the criteria. I've heard 1 professional say that nothing is "intended" to happen to their services. Sounds to me like that's an answer that's not so slightly beating around the bush. I've heard others say that they are concerned that their services will be stripped from them.

As I've stated before, I've read up on this subject quite a bit, but I'm no expert. I'm simply a citizen who's concerned for these families who will be completely shaken by this new definition. To you, I'm praying with all that I have that our amazing God will provide in what ever way he sees fit. Keep the faith! There are people out there who care about what's happening to you and are ready and willing to help. Please let me know your opinions on this. I really want to know other perspectives. If I'm missing something, tell me please. I'd love to hear that this law is going to do some good, because so far I haven't. If you haven't read up on this much, I recommend it.

-Amanda Holland